Batten is a rare, fatal autosomal recessive neurodegenerative disorder that begins in childhood (usually around the age of 4 to 10 ). It is the most common form of a group of disorders called Neuronal Ceroid lipotuscinosis (or NCLs). Physicians use the term Batten Disease to describe all forms of NCL.
Overtime affected children suffer mental impairment, worsening seizures and progressive loss of sight, speech and motor skills. Eventually children with Batten Disease become blind, bedridden and demented. Batten Disease is a life limiting disease, life expectancy varies depending on the type or variation.
For the past few years the Luke & Rachel Batten Foundation holds an annual fundraiser here in Brenham to raise money for research. Ann Watson is a local woman who has two grandchildren with Batton Disease (Luke and Rachel). Ann host the luncheon and several of us fine Brenham women help Ann out.
The event was held at the home of Shannon Webb.